Thursday, April 30, 2009

Best pizza ever

Okay, to give you an idea of how out of it I've been feeling, this pizza was eaten a few weeks ago on April 17th, with my nephew at Accademia di Vino, which has the best pizza ever... based upon personal experience. For all I know, you may have found a place that's even more sublime, but this place has razor thin, supercrisp pizza.

Mine was a special that night, with ramps (similar to wild leeks/scallions), lemon zest, and smoked bacon....Oh. So. Good. And then for dessert, I had another special, coffee creme brulee with (I forget what specialty citrus item) and (most likely) creme fraiche or something similar. Clearly it was the main item which remains vivid in my memory.

And now, onto more positive stuff -- I got the results of my free company physical today. It's really quite detailed and involves fasting, blood tests, EKGs, etc. Since every year, employees above a certain tenure and staff level qualify for a free one, I usually take them up on it. My reminder notice came sometime in December.

As you all know, my life has taken a drastic left turn since then, but I decided to keep the appointment since I wanted to know how the rest of my poor body was doing while I'm on chemo.

Good news: everything else is fine! The physician took pains to point out that my liver is doing very well, since it is key to clearing out all sorts of toxic residue from chemo and whatever other medications I get. (Hooray!) And my cholesterol is also doing very well (181 overall, 65 HDL [the good cholesterol], 98 LDL [the bad cholesterol], and 89 for triglycerides [what I mentally translate to "residue from fried fatty food").

To give you a better sense of the desired ranges, it is preferred that HDL is over 40, LDL is under 130, triglycerides are under 150, and total cholesterol is under 200.

So: YAY! And now, lunch time is OVAH, so I had better get back to work, since this afternoon looks brutal, but hey -- at least I still have a job! Oh, and there is minute progress on the oncologist-switching front, but will report back when there are further developments. Bye-eee!




Monday, April 27, 2009

Round 3


Well, I think I've finally found a positive side effect for my otherwise misery-inducing chemo. Yes, it's true -- there is one, an actual RTBT. See all that blooming greenery outside my window? Normally, at this time of year, I'd be sneezing my head off, rubbing my eyes, and generally wishing I could claw out the inside of my throat. THIS year, thanks to the Decadron I get during chemo, I have not had any "seasonal allergies".

Yep, I get dosed with this steroid because one of the chemo drugs -- probably the ever annoying Cytoxan which also causes interstitial cystitis -- makes the skin on my arms, neck, and chest itch wildly, almost as if I had hugged a poison oak or something. (Fun, eh?)

So far, that's about the only upside I can see to all of the ever expanding panopoly of drugs I get, but I'll take it... since everything else is just SO MUCH fun: nausea, fatigue, bladder irritation, bloating (also from the steroid -- yum), "binding" (as my friend Judy so artfully puts it) and other digestive unhappiness, and changes in smell and taste.

The fact that I was pretty much gone from here for a week should tell you how perky I've been feeling lately. Usually, I get back to feeling almost normal right before it's time for the next round of chemo, but this past round left me feeling like road pizza all the time. And this past Friday was round 3 (only FIVE more to go! bah! and for a breakdown of the 3 hour routine, check out my April 3rd post.) So not surprisingly, I slept for 13 hours one night this weekend, and then 10 hours last night + 2 hours naps every day. (Do I sound like a geriatric or what?)

I took today off from work and did some work at home. I know that's an oxymoron, but the ability to crawl into bed for a nap when the nausea was too much for me, well, that's worth taking some work home.

And I know I need to drink a LOT of fluid (10-12 glasses/day) to flush out the chemo from my system, but too much water makes me queasy, so I know I've been insufficiently hydrated this weekend (for a chemo patient -- not for normal humans). Therefore, I've been searching for all sorts of other stomach-settling fluids: seltzer, Gus' ginger ale, cranberry juice mixtures, iced green tea, OJ, etc. (I'm sure the combination of steroids and fruit juices has also contributed to my 10 lb. weight gain since the surgery, but that's the least of my problems these days.)

Meanwhile, my oncology team does not seem to want to allow me to switch (ggrrrr...) from Fridays to Thursdays, but I am placing my faith in the social worker at the hospital, who is well versed in the ways of medical bureaucracy. Unfortunately, this means I will be in limbo for the next several weeks during the transition, a situation that pleases me not at all (and makes my sweetie severely displeased with the hospital administration) since I plan to avoid dealing with the current team at all costs... well, unless I wind up with another fever requiring a trip to the ER again -- then I will have to speak to them. Otherwise, I refuse to ask them any questions because I like and trust them THAT much.

This past Friday, I met with a different oncology team because the usual doctor was away, and I really liked the new oncologist, so I know it's not that I dislike ALL oncologists, just my current one. However, since the covering oncology team is also on Fridays only, and my reason for switching is to move to Thursdays (more on that in a moment) I will not have the option of working with the new doctor.

Yes, the hospital really doesn't like people to switch teams because time is money, blah blah blah, so explaining that you don't want to work with your current doctor because you don't feel comfortable with them is not enough reason. I mean, just because they are in charge of your cancer treatment, why should you need to trust them and feel at ease? (Do I sound bitter? 'Cos I feel bitter.) No, they will only respect a logistical reason such as: if I get chemo on Thursdays, I can work Fridays and Mondays and collapse at home on the weekends, but I get chemo on Fridays, then I need to take off Mondays as well. (Day 1 = treatment day; days 3 & 4 = worst days for me).

So the current asinine compromise is to schedule my next treatment on Thursday, May 14th, but not see the oncologist. (TELL ME how this makes any sense.) If they tell me I have to go see her on Friday the 15th I will refuse, since the whole point of this exercise is to reduce my days off!

Just thinking about this is irking me so I had better log off and go relax before going to sleep.





Monday, April 20, 2009

Wiped out



I'm really, really tired. Perhaps this is because I just spent 4 hours at the hospital, waiting to see the surgeon for my last post-op follow up (next visit: October). Perhaps it's because I spent almost half an hour sobbing in the social worker's office. Or perhaps it's because the issue of switching oncologists is stressing me out. No -- scratch that: it's definitely stressing me out, but the sobbing is exhausting too.

That's the most sustained crying jag I've had since my diagnosis on December 30th, so I guess I was due for an implosion.

Now that I'm a bit more removed from last week's fiasco, I'm going to say that while I'm sure that my oncologist and her team are perfectly competent (or why would they be employed where they are?) clearly the chemistry is so not right. Since I've liked everyone else during this endless process -- the physicians & technicians at Columbia Presbyterian, my surgeon's team, the receptionists (between all of my medical appointments, I've spoken to a lot of them, trust me), the blood techs, the ER staff -- clearly it's a chemistry thing. And while it may be completely unreasonable of me (I admit it) the last 2 weeks of unpleasantness have fused in my mind with this particular team.

Apparently, the hospital really doesn't like it when you switch teams because switching teams sometimes results in a delay in treatment while the new physician understandably evaluates your case themselves, and time is money. (I'm hoping my otherwise fabulous insurer won't pitch a fit over this... there could be more tests, etc.)

So basically, saying you're not comfortable with your team is not enough. (Hence, the explosion of tears at the thought of being unable to switch.) Oh no. But logistical reasons such as day of the week (my current oncologist only sees patients there on Fridays) hold more weight, so I told the social worker something I had noticed a while ago: if my chemo was on Thursdays, then I wouldn't need to take off Mondays since my worst days (day 1 is treatment day) are days 3 and 4, when I sleep like the dead.

So the social worker will present it as an economic issue (which it is -- now is not the time to start racking up endless absenteeism, not in this economy: yes I know they can't legally lay off only me, but if they lay off a few people including me, well...)

There's much more hoohah, and some actual pleasant news, but I am just going to crawl into bed now and try to sleep.

Oh, and the orchids above are the ones I bought for my mom for her birthday on February 27th. Looking good still, eh?




Friday, April 17, 2009

What's wrong with this picture?



Well, nothing much (unless you have allergies -- note the budding trees). And oh yeah, what time is dawn these days?

Yeah, not feeling so hot this morning. Couldn't fall asleep last night, and could fall BACK to sleep this morning when I woke up well before dawn. I even had time to make McCann's steel cut Irish oatmeal this morning. That is just so WRONG, says the night owl. Happened yesterday too. Bear in mind, I am still really physically wiped out, but unfortunately, my brain cannot calm down and let me drift off to sleep.

(The physical lack of appetite I put down to the affects of the fever, etc. I mean, how else to explain weird moments like the fact that I didn't even half finish my frites from Les Halles Downtown last night? WTF? Those frites RULE.)

I suspect this stress/distress goes back to the fact that after yesterday's late afternoon conversation, my onco-nurse (and doc, but mostly nurse) has upset me so much that I am going to fire that team and swap docs. (Each oncologist has their own nurse, so it's a arbitrary pairing type of situation.)

And on that exciting and mysterious note, I am going to log off and get dressed for work.

Tune in soon for another exciting episode of "As The Squirrel Turns..."






Thursday, April 16, 2009

101.0


No, that's not an FM radio frequency. That was my temperature on Tuesday. Well THAT certainly explains why I felt crappy.

Yes, shortly after I posted here on Tuesday, I just gave up the fight to plow through till quitting time and asked my (highly understanding and generous boss) if I could go over to my mom's and pass out for the rest of the day. The idea of spending almost an hour getting home on the subway just made me shudder, and her apartment is just a short ride cab ride away. (Besides, once again: feel really, really sick = crawl home to mom, ya know?)

Plus she had just called and said, "Something's been beeping for hours in the apartment and I don't know what it is." Great. Just what you want to hear from your 80 year old parent who lives alone: an alarm has gone off, and she doesn't know which one.

Anyway, I dragged myself over to the drugstore a few bloacks away from the office, bought a thermomenter, and cabbed it to mom's, where I curled up in my old bed under the blanket, the coverlet, and a dressing gown (I was COLD). I passed out for a while and then took my temperature later in the afternoon. 101.0 degrees. Oops.

Well, anytime a chemo patient's temp goes above 100.4 you're supposed to call your oncologist, so I did.

What I didn't realize was that this meant she would then tell me to go to the cancer ER (75+ blocks away from my mom's). DOH!

Yeah, just what you want to do when you feel flattened by a semi: get dressed and travel halfway across Manhattan.

Thankfully when I told my sweetie the happy news, he promptly said he'd meet me at the ER. (By the way, I call it the cancer ER because it is an ER dedicated exclusively to cancer patients. No car crash victims, gunshot and stabbing injuries -- think of the germs!!! -- just us chemo folk.)

So we then spent the next 3 hours in the ironically named Urgent Care center. (My initial visit -- a perverse milestone, as I suspect chemo patients may wind up there more than once during the course of their treatment.) During the second half of my sojourn there, we were moved from the reception area to the triage area (the cubicles with the gurneys, for those of you lucky enough never to have set foot inside an ER) where I could lie down, and doze under my sweater and down coat.

The upshot is, that the initial round of tests (I am still waiting for the results of the second batch, which take longer) they determined that my blood counts were not dangerously low, and in fact that my white cells and leukocytes were way up. In short, I had some kind of infection but it was unclear what.

Had my counts (red, white, leuko) been too low, I would have been treated to my first night ever as an inpatient. Having seen just how much fun that's been for my mom and my sweetie's dad, I am happy to pass up that milestone, thanks.

Finally they sent me home with a nice bottle of Cipro to treatment my unknown infectious thingie, which I am guessing was most likely related to the cause of my "acute uncomplicated cystitis", bacterial or not. (I have to say, I am really not pleased with my oncologist so far, and am considering switching, since the ER physician said that my white counts were already high last week -- a fact which apparently didn't make enough of an impression to cause her to give me Cipro THEN!)

I took yesterday off, since my temp was still 100.5 in the morning. (Oh, once again, proof that I was really feeling off: watching 2 hours of food network caused absolutely no hunger, although I may try this espresso brownie recipe in the future -- conveniently, there is a co-worker birthday next week)

Hallelujah - by last night, not only had my fever finally left, but so had (FINALLY) my "non-bacterial bladder irritation". While the former is very important, you have NO IDEA how grateful I am for the latter (unless you too have experienced a UTI).

Today, I am back at work, and once again, posting during my lunch time and adding food porn here. (My ER visit caused my sweetie and I to miss my friend Laura's Peking duck shindig, so in lieu of that, I give you: my mom's belated (my fault) Ching Ming dinner for my dad on Saturday.)

Oh, and today's RTBT: Cipro!




Tuesday, April 14, 2009

BC vs. AD

So I've been thinking about these two little acronyms a lot this year, and thought it would be appropriate (since it was just Easter) to muse aloud:

  • BC = Before Cancer -- can barely remember life before Dec. 30th
  • AD = After Diagnosis -- it's a whole 'nother era

I mean, I literally cannot remember when I felt carefree and completely healthy. (Oh, the things we take for granted!) Nowadays I may sometimes feel okay, or pretty normal, or less worse, but it's always overshadowed by the lurking spectre of the next round of chemo. Blech. (That would be Friday, 4/24, by the way.)

And more frequently, I tend to feel either exhausted/fatigued, nauseated, bloated (since I am to drink 10-12 glasses of liquid a day to flush the chemo from my system -- ironic, no?), achy, or a thrilling combination of any and/or all of the above.

It's like when you feel well, you don't viscerally remember what it's like to feel crappy. Conversely, when you're ill, you cannot imagine/remember the feeling of wellbeing that you have when your body is healthy.

Guess where I fall on the spectrum at the moment.

In fact, I am tempted to ask for the afternoon off sick. Maybe I will just leave early at 4pm.

The kicker is that my friend Laura is here for a few days on home leave from her posting in Africa, and everyone has been looking forward to a big Peking duck dinner out tonight. Intellectually, I am too, especially since I haven't seen Laura since August. Physically, I just want to sleep for a few hours.

As my sister reminded me last night (I am such a rocket scientist sometimes) I can't expect to always just pick up and do stuff the way I used to, even little things like going out for dinner or visiting friends. My body just isn't up to it.

Mentally, that's a hard concept to really grasp, ya know?

Witness: my sweetie & I were supposed to go visit his parents on Sunday, and both he and my mom pointed out on saturday that perhaps I should skip this visit, due to my current need to remain chained near the loo at all times. (Did I mention they live 2 hours away in south Jersey?)

I was bummed but yet relieved (2 hour car ride each way? how many rest stops would that have entailed? four? six? eight?) and sent him off with my present for his dad, who is also going through chemo.

His mom said he's a bit down and I totally get that, since I've only have 2 treatments and am worn out. He's been going to (48-hr. treatments) since last year!

So I bought him a milk chocolate egg from Maison du Chocolat (one location is near my office) which is filled with chocolate fishes and chocolate seashells. (Those wacky French ;-P) Hope they send me a photo when they crack the egg!

I also bought my sweetie some chocolate-covered ginger, which is what you see in the little red box. (The nice French salesman let me try some. Yum.)

OKay, lunch time is OVAH.

Saturday, April 11, 2009

Sort of Seder (not)

Misery. Okay, I'm just going to start out with the depressing stuff. Then we'll get to the food porn.

Warning: embarrassing medical stuff ahead. Guys in particular may want to avert your eyes. (I'll let you know when it's over.)

So this week I've been suffering from all of the joyous symptoms of a UTI (urinary tract infection, a/k/a cystitis). Women will know what I mean, and cringe in sympathy.

For you MEN, anatomy dictates that it is unlikely that you will have ever had it, so -- you know when you have a cut in your mouth and you drink something acidic like vinegar, and your eyes water in pain? Okay, got that memory of pain set in your mind? Now transfer that sensation somewhere else even more sensitive. Yeah. Like that.

But wait -- it gets better: not only do you experience that special agony, BUT the UTI causes you to pee extremely frequently, so you get to experience it A LOT. Many times a day, in fact. Now think about having that going on from Wednesday till today. Yeah. I'm tired.

Oh, and as an added bonus (yes, there's more) last night I got up once an hour because of said demon infection. So I didn't have an 8-hour night of sleep. Oh no, I had 8 one-hour naps, which is SO not the same. I'm exhausted.

Not surprisingly, I wound up taking Thursday off to go to MSKCC and have a urinalysis done (and also because I was wiped out from the pain), and on Friday they told me, "Oh no, you don't have a UTI -- no bacteria in the test results. No, you're just experiencing bladder irritation from the Cytoxan, so we're not going to prescribe any antibiotics. Drink more fluids." Now bear in mind I'm already drinking 8-10 glasses of stuff (64-80 oz.) daily.

I was ready to cry.

My co-worker Dennis suggested I contact Cytoxan user forums or their equivalent, so I e-mailed the ladies in the MSKCC adjuvant therapy support group. They were wonderful. Two of them immediately called me. One of them gave me some suggestions for over-the-counter meds for which I was profoundly grateful. The sympathy alone was priceless (vs. the "oh well" attitude of the onco-nurse). I heart these ladies, all of whom are having way stronger treatment than I am but still found time to reach out to me, the newbie.

Eventually the nurse called me back ("gee, I don't know why I didn't think of this before") with a suggestion for pyridium, which I promptly ran out and bought after work at Duane Reade. The side effects of the pyridium (see link above) while possibly weird are NO CONTEST for the symptoms of cystitis. (Ironic, no? Side effects of something taken to combat the side effects of chemo. Fun.)

Ladies, take note: some of the brand names are AZO, Uricalm, Cystex, Uristat.

So things are slowly getting better. Now I'm just suffering from "abdominal (or suprapubic) pain" and frequent (vs. insanely frequent) dashes to the bathroom and all of the attendant unpleasantness that follows.

Okay. It's safe now. You can come back and read about food.

We're just going to indulge in food porn from here on out.

(By the way, I am listening to an NPR piece on DEEP FRIED MAYONNAISE. Are you scared yet? I am! Actually, it's deep fried hollandaise sauce, but still....! If I were feeling less miserable, I'd be perversely curious instead of merely appalled.)


Ummm... this week was the beginning of Passover, so the sight of the tableware to the left in a Pylones store was hilariously appropriate: Matzoh plates AND matzoh placemats! Only in NYC folks. ;)

That was before I went to have a roast chicken, grilled asparagus, baked & roasted potato dinner with my friend Jackie Thursday night. Yum!

I brought the fresh asparagus, which she "grilled" on the broiler with some olive oil & salt. We each split half of (but couldn't finish) a cornish hen. She baked potatoes (one each) and the chicken came with itty bitty roast potatoes. (The last time I had a meal with TWO types of potatoes, I was in Ireland!) Oh, AND she made bread from scratch. Ooh la la!

So does roast chicken count as a sort of shabbas dinner? ;-) I understand from my long suffering friends that "real" seders by their Orthodox relatives are nowhere near as tasty as what we had. Heh.

That was Thursday. On Friday, I invited my friend Sam over for homemade lasagna (which I had assembled on Wednesday night).

Behold, my [ground] turkey, spinach (whole wheat) lasagna, with part-skim mozz & part-skim ricotta (pre-baking):


I was kind of concerned about my generous hand with the ingredients, since it towered about an inch taller than the sides of the 9" x 13" pan:


I assuaged my fears by putting the 9" x 13" pan inside a larger pan, sort of like a double boiler. I think it turned out okay, don't you?

But why is it that there is no such thing as making a LITTLE lasagna?

After a generous serving for me, and a hefty serving for Sam, this is what I was left with:

So I sent him home with a big slab in one of the plastic containers, along with a slab of the banana-oatmeal bread I made (4 pts/slice) which both smelled and tasted yummity!



Now I'm going to go have a slice of said banana bread and go curl up in a little ball on the couch and listen to Car Talk on NPR. (Yes, I know I don't drive, but these guys are tres amusing nonetheless, and the questions they get...!)



Monday, April 06, 2009

Monday, Monday

Today was a delightful day weatherwise. Ugh. Luckily, I didn't need to go farther than my couch, which was good, since I only had the energy to eat and nap. Granted I did do about 2 hours of work (my trade-off with my boss for taking today off to recover from chemo) but it was a hard climb to squeeze some sense from my brain.

I'm not sure how with 12 hours of sleep every night this weekend, and the occasional 16 hour night, I still need so much naptime. (Did I mention the 1 hour nap at lunchtime today?)

Oh, and it may sound like a hard bargain, but really, it is nice of my boss to allow me to collapse like a lump on my couch on the Mondays after my Friday chemo. I can imagine other people requiring me to use a vacation day. And just because someone is doing the decent thing, doesn't mean that such decency should be taken for granted, yeah?

I'm trying to notice the good things in life... like the ability to become a lump on my couch in my fuzzy robe and jammies, after FreshDirect brings me seltzer and Gus' Extra Dry Ginger Ale, asleep under a quilt made for me years ago by my friend the Dread Pirate Rodgers. (It's a really beautiful quilt, by the way. See? If you want to read about the intricacies of the many hours of work that went into the crafting of the quilt, please see my friend's page devoted this particular project.)

One old roommate once described me as relentlessly perky (the horror!) and while I hope I'm not THAT bad, I really am trying to keep a positive outlook on things. Cancer doesn't mean that life sucks (well, okay, I would return it to sender if I could, I suppose) but it does mean -- in my mind -- that it's a chance to appreciate all the good things there are in my life. Like my sweetie, my gals, & my pals my family, my extremely decent co-workers, you know... stuff! :-)

I have even started trying to weed through my insanely huge yarn stash, and both organize it a little better (and no, the giant mound of half-finished projects on the living room rug does not count as "organization") and de-stash (i.e., winnow down the hoard).

You see before you on the left my most recent success: a batch of Lion Brand Wool-Ease Sportweight (since discontinued) which I bought one year at the Yarn Riot. It's actually quite nice yarn, but I simply faced the fact that I would never actually DO anything with it. And voila! I priced it well enough on eBay that it sold within 24 hours. Yippee! Now all 3,000+ yards will go reside in someone else's home (in Fargo, ND, actually -- whee!)

There's also another batch up for bid (eBay item number: 290308178134) and while that hasn't sold yet, it has at least a bid on it, so I know it will be leaving my home one way or another. Hooray! (Despite the fact that I bought it at the Riot with a precise project and recipient in mind, clearly, it has not come to pass.)

Speaking of homes, my poor mom was looking forward to a visit from me tonight, but I had completely forgotten, because I was just desperately trying to remain conscious while sprawled on the couch. So when I called her to say "hi!" well -- oops. So I will go over tomorrow night after work and let her feed me her homemade oxtail soup. (Hey, warmed over soup by my mom is still way better than freshly made soup from anyone else!)

And finally, speaking of hopelessly delayed projects a la my knitting & yarn stash, here is today's shot of the FIVE YEAR traffic circle project in front of my building. How do I know it's been five years? Well, my 5-yr. ARM is going to adjust this summer, and they broke ground the week before I moved in. Dorks.


Friday, April 03, 2009

Holy tostitos, Batman!

My friends and family are amazing. Truly. I have broken the $1,500 mark in my Avon Walk donations ... fund? Already! I'm truly touched. And kind of awed. When I expressed my astonishment to my friend Margaret, she commented (after making a donation -- hooyah!) that "this is when you reap the benefits of being [me]." HA! As the Brits would say, I'm chuffed.

I'm also feeling better about spending rather a chunk of change on buying new running sneakers (or to continue with the Brit theme, trainers) in preparation for my training walks and, eventually, the big 2 day event in October (although I will be getting a successor pair to these in September, so that I can break them in). I am so grateful to my friend Marci for helping me out with the ins and outs of the mysteries of high tech sneakers. She should know -- she runs the NYC Marathon every year!

And then, today my friend Jackie offered to accompany me to chemo, but I felt guilty because it's basically hours and hours of waiting (an hour of it in an examination room while in a pink mammo gown) so I compromised by hanging out with her afterward for a few hours on her comfy new couch, knitting away and indulging in our joint crush on John Barrowman/Capt. Jack. (More on the knitting and DVDs another day, in a different post).

As for the chemo itself, today's episode was not so bad (although unsurprisingly, having an IV stuck in my wrist did hurt -- a fact which apparently amazes some patients according to today's chemo nurse: well, DUH!) and all of my key blood test results came back within acceptable ranges: red blood cell count, white blood cell count, platelet count, and neutrophil count (a type of white blood cell -- never know there were so many flavors!) So since I "passed" my tests, I got more chemo cocktail.

This is how I know that my chemo visit will never be less than 3 hours at the minimum:

-- arrive & check in
-- get finger prick blood test (or whatever that teeny one is called: today's went MUCH better than the first time, since I suggested the 4th finger, which has much thinner skin than the index finger)
-- wait for an hour for the medical oncologist to get the blood test results back (usually sitting in a pink patient gown, and hopefully flipping through a trashy magazine from the waiting room)
-- have a short visit with her (5-10 min.)
-- check in at the chemo desk & wait an hour (or two) for the cocktail to be mixed up for me (try to score some food at this point, since it's noonish)
-- gulp down meds (new ones today: Zofran, for nausea, and Decadron, a steroid for the itchy flush I got last time)
-- enjoy immobolization courtesy of the IV drip for 45 - 90 min.
-- get bandaged up and run away!

Unfortunately, during today's lunch break, I made the mistake of buying a bottle of Honest Tea with my veggie pizza. Naturally, after waiting until I was starving, they were finally ready with my chemo cocktail, so I walfed down the 'za, threw the (unopened) bottle in my bag, and trotted back to the hospital... only to find that it had leaked about 6 oz. of mildly sweetened tea ALL OVER EVERYTHING in my bag! ARGH! You know, minor things, like my notebook with all of my medical notes from each doctor visit, and my CD player, which I use to listen to audiobooks during chemo.

That player's dead now, by the way, so I am pondering buying another one, since I do want to listen to the end of my Elizabeth George murder mystery, Careless In Red. Well, at least they're cheap these days. I was so peeved that I called the company and vented my displeasure that their UNOPENED bottle of tea leaked and drowned everything in my purse. They offered to send me coupons (why would I want MORE?!) and are sending me a mailer to send them the bottle back so they can figure out why it sucked massive wind like that (my words, not theirs of course).

Actually, I was upset enough that I sniffled a little (probably stress over the chemo and not really the dead CD player, although that did annoy the cr*p out of me) and told them that I was really counting on listening to an audiobook while I was at SLOAN-KETTERING having CHEMOTHERAPY. Pah. (Yes, the man I spoke to felt very guilty.)

Okay, now that I've taken it out on the guilty party, I can go back to RTBT:
  • good health insurance -- have I mentioned today how grateful I am to have it??
  • my friend Jackie -- see above
  • my friend Marci -- see above
  • my friend Margaret -- see above; she also introduced me years ago to tamago (yum!)
  • 2 down, 6 to go -- hey, it's better than 7 or 8 more sessions to go!
  • date night with my sweetie -- thanks to my various anti-nausea meds, I was able to enjoy a delicious meal (of entirely cooked foods) at Miyagi, mellow little neighborhood joint I like, while he had (sigh) a tray of suski and a big glass of sake. My fried baby octopus, spider roll, iced (UNsweetened) green tea, tamago, and peanut sesame string beans were also not too shabby. :-)
By the way, I might disappear from here for a few days, and go pass out (essentially). I also took off Monday from work, just in case. So if you don't hear from me until Tuesday or so, just imagine me napping or on another date night with my sweetie tomorrow (yippee!)

And so, on that note, I leave you with this very detailed (7 min!) video on how to make tamago. There are also shorter ones on YouTube, but I found the techno soundtrack on this one amusing, and the meticulousness appealing.


Thursday, April 02, 2009

Gratitude

So it occurs to me that in the midst of all my whining, I haven't paused to reflect lately on the good stuff. So forthwith, RTBT:

  • dried ginger -- yum!


  • simplicity -- one thing about my dietary and medical restrictions is that my morning pill dosage has become veeeery simple. No vitamins, no supplements, nada else.


  • Kodo -- check out their (copy restricted) YouTube video. Keeeeewl! Took my friend Marci to see it on March 20th (sort of as a thank you for her many visits accompanying me to the doc -- mostly because I really wanted to see them in their only appearance in the NYC area this year) and she enjoyed it too.

    Watching those insanely toned drummers has made me wonder about taking lessons near home, since -- let's face it -- you are more likely to "exercise" if it's an activity you find fun, and not just gym time.


  • good family -- we all have families (unless you grew up in an orphanage, at which point, I have just been sooooo insensitive) but it's nice when you actually LIKE your relatives, and I happen to think I have a pretty good bunch. (We're just going to ignore the ones in Brooklyn.)


  • good friends -- I can't believe I broke $1,000 in contributions already, for the NYC Avon Walk in October. It makes me all teary-eyed and mushy inside. You guys rock. (I will still continue to ask for more money though...HA!...since I have to raise at least $1,800.)


  • my sweetie is back from vacation! He was gone from March 4th to the 21st, and I didn't get to see him until the 25th, due to flu issues, so I'm still all excited whenever we can get together. Next up: date night on Friday! (Sure it's chemo day, but I usually have 12-24 hours before the side effects take me out.)


  • magical animal! -- the pork rillette at Les Halles Downtown (see right) is really spectacularly fatty...Yum! My friend Marci called it a ham salad, and really, an appetizer sized portion is all anyone could really handle anyway.


  • $0.99 ice cream scoopers -- they work great for making cupcakes! I made a batch last week as a combination "welcome back" for a co-worker who had knee surgery, and "thank you" for all of my co-workers who were so supportive during my leave of absence. Not a word of pressure or complaint about their crushing workload while I was gone (laying off half the department has that effect when even one person is out) but instead only "no, you rest and feel better and come back when you're ready".


So really, I do have a lot to be grateful for, I think. Don't you?